Living Positively: D-Mom Of 4 Children With Type 1 Diabetes

On the surface, Elissa Renouf looks like your typical mother of five beautiful, happy, healthy, well-loved children, four boys and one girl, ages 13 to 21. Digging further, you’ll learn their family’s life is a little more complicated than others – four children with type 1 diabetes (two with celiac disease), and one child with epilepsy and suspected brain tumor. Even with the constant on going management of the health issues they’ve been handed, they’ve never lost determination to live as positive as possible.
Q. Tell us what it’s like being a D-Mom to four children with diabetes, and one without?
A. It’s a full time job, but having five kids in general is a full time job. Charlie was my first child diagnosed with type 1 diabetes in 2002, at the age of three. My responsibility helping manage my children’s diabetes was a general progression, and every eight months, it seemed like another child had a diagnosis. I wanted a positive, stress-free life for myself and children, so had no other way but to learn to manage and accept it.
Q. How do you help each of them manage their diabetes? How does it differ from the next child?
A. It is important for my children to manage their diabetes self-sufficiently, so I had each of them involved in their management from day one. The more they understood how to manage their diabetes, the better control they could have so they could grow into happier, healthier adults. I taught them how to count their carbs and the glycemic index in food, and that if they wanted food, they would also need insulin. Empowering them to manage their diabetes gave them the confidence to make sound diabetes management decisions the rest of their lives.
Q. With four children with diabetes, how do you keep track of their blood sugar trends and diabetes supplies?
A. When they were younger, I kept a logbook with all of their numbers and time of day, and would sit down after every meal to write everything down. It was easier for me to write it down so I could easily glance down at their trends, insulin to food ratios, etc. It was a big job. During the night, my husband and I would always test our children at 9:30pm and 1:00am, switching off weeks to do the nightly testing.
Q. What’s the most important thing you’ve learned from the time your first child was diagnosed, to when your latest child was diagnosed?
A. From the first diagnosis, I’ve always tried to keep a positive outlook on life, not dwell on why so many health misfortunes have been thrust upon our family, or blame myself. More importantly, I try to never blame anything on diabetes, because I don’t want my children being resentful of their diabetes, so I’m careful with my choice of words and how I phrase things. I accept diabetes is there, and it’s just part of my life and theirs. If someone has bad levels that day, it happens. Tomorrow is a new day, and we’ll start over again.
Q. With so much of a focus on the health of your family members, how do you find ways to prioritize your own individual health and well-being?
A. Originally a farm girl, I’ve always loved animals, but I didn’t realize how important they were to me until I was older. When Charlie was diagnosed with type 1 diabetes, we lived on a farm and had a lot of animals. At first, I thought we wouldn’t be able to manage everything, but being with them outside with nature actually helped calm me down and refocus my attention on something else. Starting my own business, Diabete-ezy, in 2004 has been a great distraction as well, and it also empowers me by helping others.
Q. What advice do you have for other D-Parents?
A. Positivity is so important, and upsetting as it is when your child is diagnosed with diabetes, it is manageable. Never blame diabetes on anything, or say your child can’t do something because of diabetes. Yes, diabetes is hard, but if my family can remain positive with the challenges we’ve been handed, then there is no reason why other families can’t do the same. Take care and always try to enjoy life, whichever direction it may take you!
Jackie, thank you for sharing your story
Hi there! I am new here and have not read much so I apologize for not knowing the answer, but wanted to ask you if you or your husband have any autoimmune diseases yourself? I have Hashimoto’s thyroiditis and our 4 year old son has been recently diagnosed with Type 1 as well as celiac disease and I’m trying to find research on if there are any links to my own autoimmune disease and our son’s. Thank you.
amazing family and amazing mom hats off
Amazing Family.
That’s amazing. I’m a type 1. I also have celiacs, lupus, stage 4 kidney disease, autonomic disease and a few other things as well. That’s why it’s best to take of the body from the very beginning. I can’t imagine taking care of 4 children with T1. How do you afford test strips and insulin? Being a diabetic is costly for me. But I know it’s all good
What a great message Elissa leaves about staying positive, no matter what the circumstances. Sometimes it’s very hard to do so, but trying to be positive is a great thing to strive for.
That’s a great attitude to have, Peter. Keep up the positive outlook!
What a strong family and amazing mother. So in awe of this! It’s like running your own private diabetes camp in your home. WOW!
Kat, thank you for the kind words about Elissa! We think she’s an amazing mother, too!
What an amazing family and awesome Mom!
Thanks for the kind words, Susan! They’re all amazing!
wow 4 !!!! I have 3 children 2 of which are t1d I can’t imagine the number of used glucose strips found around your house
You too sound like a superhero supermom, Amy! I’m sure they’re used to finding a lot of test strips and other diabetes supplies around the house. 🙂
It’s really hard to manage so many autoimmune diseases under 1 roof. My youngest, now 14, was born with type 1 diabetes, shortly after, I was diagnosed with lupus and RA, and 5 months after that, my other son was diagnosed with Spondyloarthropathy ( kind of a mix of rhumatoid arthritis and als) and a rhumatological blood disease. It gets really hard sometimes to know that I passed that gene to them. It’s so nice to have someone like you to help put things into perspective. We take really good care of each other but I need to stop focusing on the diseases and live life better with my boys. Thank u so much for sharing your story♡
Jackie, thank you for sharing your story with us. It sounds like you’re just as an amazing mom as Elissa.