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DiabetesSistersVoices: Gain Support and Help Research

DiabetesSistersVoices: Gain Support and Help Research | The LOOP Blog

As a patient living with diabetes, social media has become an important part of my life. It’s where I connect with others who have diabetes for support and advice. It’s where I learn about the newest technologies and innovations that can keep me healthy. It doesn’t take the place of my doctors, but it provides me the information and education I need to arrive at my medical appointments as an informed and empowered patient. Blogs, Twitter, Facebook and forum sites have all become part of my daily diabetes toolkit.

I recently joined a team that launched a new social media site this past November. It’s called DiabetesSistersVoices and it is a social network that is a little bit different from other sites I’ve been involved with. This site is unique because it combines social networking with research to improve patient outcomes. Women with all types of diabetes can join the site to ask questions, share experiences and search for resources. Patient involvement in the DiabetesSistersVoices forums can also help researchers to better understand what health topics are most important, and what types of research is needed to improve the health and care of women living with diabetes.

DiabetesSistersVoices: Gain Support and Help Research | The LOOP BlogDiabetesSistersVoices was created through collaboration between DiabetesSisters, The Johns Hopkins University, The University of North Carolina, TrustNetMD and a Stakeholder Advisory Board of women and diabetes advocates. This project was funded through an engagement award from the Patient-Centered Outcomes Research Institute (PCORI).

Anna Norton, CEO of DiabetesSisters, took the time to offer a little more insight on the project. “Our goal is to provide an interactive, engaging website for women with diabetes where they can discuss what is important for improving their health and well-being in order to better guide the research community. We will be collecting the top research and health care questions for a final report: The Patient-Centered Women’s Health and Diabetes 10Q.This report will help policy-makers, advocates, researchers, clinicians and other groups to better understand what priorities in research should be.”

Are you interested in getting involved?  If you are an adult female, have been diagnosed with type 1 diabetes, type 2 diabetes, pre-diabetes or gestational diabetes, you are eligible to participate in this study. Just go to www.diabetessistersvoices.org and click “Register.” You will need to complete a short screening, online consent form and survey. Once finished, you will be able to access the site and connect with others while helping guide important research.

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